I have been wanting to write this blog since I found myself able to speak about my vision loss. As with many things in life, I set the project to the side for unknown reasons. This blog will follow my journey, discuss diagnostic exams for vision loss, and treatments that may be beneficial. Perhaps it can help just one person in their own vision loss journey or describe what someone you know may be going through.
On a Saturday in August, I attended a going-away party for a sweet friend at a coffee shop. Afterwards, I drove home and was chatting with my husband. All of a sudden, I couldn't focus my vision on anything. Objects were moving and blurry. It seemed as though everything was oscillating (moving up and down rapidly). I waited nearly 15 minutes before stating anything to my husband as I thought it would just go away. After letting him know, I laid down, rested my eyes, and decided to meditate because I figured it was stress even though I was having a great day which felt stress free. Nothing really changed but I convinced myself that I was okay and my vision wasn't improving because I was so focused on what I was seeing.
I had my own going-away since I had just completed my last day of full-time job as I transitioned to being an adjunct professor and part-time pharmacist. My husband asked if we should cancel, but I insisted we go. At my going-away party, I tried to act as though nothing was wrong; however, I couldn't read the menu (which is a huge problem when you have celiac disease and have to be extra cautious) and the whole world seemed to be moving. My husband helped secretly read the menu to me and assisted me when I wasn't quite sure how to do anything without my eyes. After we got home, we decided I should go to the ER to ensure I did not have a detached retina since intervention for that is extremely time sensitive.
At the hospital, they did not have an ophthalmologist available on a Saturday night and doubted that the one on call would come in on a weekend so they decided to do an eye ultrasound (more to discuss this in the future). The eye ultrasound showed no retinal detachment so they were moving forward with blood work, a CT scan of the brain, and a MRI of the brain. Due to the time of evening, they admitted me since the MRI would not be accomplished until 1am. Nonetheless, all the tests came back essentially normal and I was discharged the next day.
By the second day, the oscillating movement had minimized, but my left peripheral vision was extremely blurry. I got an "emergency" retinologist appointment for that coming Tuesday, which I had a few diagnostic exams completed with no obvious abnormalities. My retinologist thought that it could be an ocular migraine and told me if it didn't improve to come back in a few weeks.
Needless to say, it didn't improve and continued to progress each month, each week, and even each day from there. I will be writing soon to discuss more regarding the progressing of vision loss, diagnostic exams, and information about all of the potential diagnoses that were high probability at one time.